

After sharing all this with Moki's neurologist he is now stumped. The way that Moki responds while both on and off antibiotics, makes it appear as though whatever is going on is the result of some sort of infectious agent, but nothing showed up on the CSF Tap, which leaves us pretty much at this time baffled. Moki's neurologist is thus going to present these facts to someone higher up and see if maybe they can draw any conclusions, or give us any possible ideas as to what may actually be going on.
As for the orthopedic problem, Moki's neurologist did get ahold of one orthopedic surgeon, who felt that Moki's particular case should be examined/reviewed, by someone a little higher up, who has more experience than her. So now Moki's neurologist is trying to get in touch with this second orthopedic surgeon to have Moki's orthopedic case reviewed by them. Moki's neurologist is going to try to do all this before tomorrow evening and get back to us then. Unfortunately, if Moki's neurologist isn't able to track everyone down before then, we will have to wait two weeks to hear any additional news, since Moki's neurologist will be out of town the next two weeks for a conference.
The good news is that we did get the go ahead to continue physical therapy/water therapy with Moki, so he will be going to his next physical therapy appointment this Saturday as planned. We took last week off from physical therapy because we didn't want to over whelm Moki by doing to much in one week, i.e., MRI, CSF Tap and physical therapy. We where a little afraid that we might have to stop the physical therapy as a result of the thoracic inlet problem, but as of right now, we are being told it is ok to continue with the PT.
So with all that said, we are officially back to square one, or should I say square two. We do know a little bit more than we did before the MRI and CSF Tap, and the tests did actually make us aware that there is a problem with Moki's thoracic inlet, we still just don't know however whats behind it all. Well thats it for now. We'll continue to keep you posted as we learn more...
In other news:
Deb and ML are holding a wonderful "Blissful Bean Bag Raffle," to help raise money for Moki's ongoing medical costs. The funds for this raffle will go towards benefiting Moki's orthopedic procedures, of which we hope to bring you more news soon. Raffle tickets are only $2.00 and can be purchased directly using the paypal button on our left hand side bar. For more information about the raffle, and to see what you may win, simply click the "Blissful Bean Bag Raffle," link above. Thanks everyone.